Alt.Support.Lupus (ASL) Frequently Asked Questions
Version 4.0 March 2004
NOTE: Where possible (Where KC remembered to do so), terms that are defined in the Glossary are shown in this way.
There is a UK-based mirror at http://www.northeastlupus.org.uk/katfaq, which is what you are reading now.
What is A.S.L.?
A.S.L. is a Usenet newsgroup called alt.support.lupus which welcomes anyone who has - or suspects they have - Lupus or a similar disease and anyone related to, caring for, or supporting them. While there are no rules for participating in alt.support.lupus, there are guidelines and these can be found ASL Purpose and Guidelines.
The A.S.L. FAQ attempts to provide as much information as possible about the Alt.Support.Lupus Usenet newsgroup and about Systemic Lupus Erythematosus and related conditions or diseases.
Disclaimer: The information contained in this FAQ is given in good faith, but should not be considered as a substitute for the advice of your health care professional(s). No liability is accepted for any consequences of your following or rejecting any of this information.
What is Lupus?
Lupus is an Autoimmune disease where the patient's immune system creates antibodies which attack the body instead of protecting it. It manifests in three basic forms, Systemic Lupus Erythematosus (SLE), Discoid Lupus Erythematosus (DLE) and Drug-Induced Lupus Erythematosus (DILE). DLE can sometimes progress into SLE but that is rare (less than 10% of the cases). DILE is almost always reversible within about 6 months after removal of the offending drug. SLE is the type talked most about on this group but sufferers can have symptoms that are common to DLE also. Lupus is a disease that is grouped with other diseases sometimes called Collagen Vascular Diseases or Connective Tissue Diseases (CTD).
SLE is a very personal disease, as it can take many forms and therefore is called the disease with a thousand faces. Diagnosis is difficult, the cause is unknown, and the symptoms vary widely from one patient to another and from day to day for the same patient. While some people are severely affected by Lupus, many others can live virtually normal lives.